Monday, February 21, 2011

That Day Again

Today was the day Masie went back in for her test, we have been dreading it ever since they told her that her second surgery has yet again failed. We are hoping and praying to god that these test will show that her body has fixed the small hole that still remained in her bladder causing reflux. Unfortunately if the test show she is still refluxing she will have to go for a third reflux surgery to fix the problem and then yet again a year later she will need to repeat these horrible, painful tests. Her appointment is the 1st of March so please, please, please pray, fingers crossed that this cute little perfect girl gets some good news that we have been waiting for since she was 3 years old. Please let this be the end of her bladder problems.

Here is a picture of her disliking the machine they put her in to do the renal test, amazingly enough this was taken only minutes after the test. She did awesome, well once I caught her. She did her "hell no" thing and took off running when they called her name. She was so scared and immediately started crying and screaming. We got her in the room and on the bed, the nurse was lovely and talking so softly to her, but she was frightened. We calmed her as much as we could and then they started, they had to stop and call for help as she was so strong they couldn't hold her down, her poor legs were red raw when they finished. Seeing her so distressed I asked to speak to her a second, they released her and I held her so tight and whispered softly in her ear while stroking her hair. I told her to lay so still and find her happy place, the more she struggled the harder it was to get the tube in, I said if she fought it, it would come out and they would have to do it again. Something then clicked and she was calm and didn't even cry when they put it in, she simply said "owe owe". Once it was over she turned the the guy and said "you didn't have to duct tape me this time" he smiled and said "that's because you were awesome Masie" (he was the one that did it the last time and remembers her). After her hospital trip we went to the El Paso Zoo. it was a great day out and a first for Hailey. She walked the whole way around without a pushchair, being carried or whining!!! Yay Hailey. We had a nice time together.

6 comments:

  1. Fingers crossed, here's hoping for good news Masie xx

    ReplyDelete
  2. Oh that made my chest tight with panic just reading it. How hard to be the mom. You did the right thing talking to her and explaining to her and calming her. That's what mom's are for. March 1st - ok please text me right away I am going to be thinking of her constantly.

    ReplyDelete
  3. Your are a big girl Masie,Iam so proud of you Love you lots Grandma

    ReplyDelete
  4. Masie our hearts go out to you every time you have to go for that test, we have all got our fingers and toe's crossed for you, please god let this be the last test. xxx

    ReplyDelete
  5. we are all praying it is the last and hope it's the end of it all. good luck to two brilliant parents who have been through so much with a child

    ReplyDelete
  6. Masie I am so proud of you that you let the doctor do the test. I know that is not a nice thing to have done but you know the doctor wants to make it better. What a fantastic mummy you have. Love you all xx
    I will be saying a little pray for you x

    ReplyDelete